A Rs 16 crore medicine can save Ayaansh's life; he needs your help
By Asianet Newsable English | First Published Feb 16, 2021, 12:51 AM ISTZolgensma, a gene replacement therapy, is today breathing new life into children like Ayaansh who suffer from SMA. But the one-time infusion is also the world's most expensive at Rs 16 crore!
Ayaansh Gupta is 2 years and 8 months old. At an age when toddlers play with toys and start expressing themselves, Ayaansh needs non-invasive ventilation support for 12 hours a day to breath.
Ayaansh was six months old when his parents Rupal and Yogesh Gupta realised that all was not right with their son; he wasn't crawling or sitting up. Two months later, Ayaansh was diagnosed with a rare life-threatening condition called Spinal Muscular Atrophy (external link).
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Spinal Muscular Atrophy or SMA, which impacts the nerve cells and spinal cord, is fatal. The average life expectancy is less than 18 months.
Two years on, Ayaansh requires physiotherapy every day for 4-5 hours. He is on a complete liquid diet, as he is unable to swallow. And among other health complications like sleep apnea, the toddler has a chest deformation called pigeon's chest.
But all hope isn't lost for Ayaansh.
Zolgensma (external link), a gene replacement therapy, is today breathing new life into children like Ayaash who suffer from SMA.
But the one-time infusion is also the world's most expensive at Rs 16 crore!
Ayaash's parents are running pillar to post to get their son the treatment he seeks. So far, the middle-class couple has managed to generate just over Rs 1.5 crore with the help of fundraising website ImpactGuru.
You can do you bit to help Ayaansh's parents who are based in Hyderabad.
You can either CLICK HERE to donate via ImpactGuru site or you can transfer directly to the bank account of the fundraiser. (Only INR transfers are allowed).
Account number: 700701717157379
Account name: Ayaansh Gupta
IFSC code : YESB0CMSNOC
(The digit after B is Zero and the letter after N is O for Orange)
For UPI Transaction: supportayaansh1@yesbankltd
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